Julia Spiess Lewis
Perry Communications Group
Addario Lung Cancer Foundation Launches Resource to Provide Information on Medical Advances and Research to Lung Cancer Patients
ALCF’s Patient Portal provides a holistic research and support system for lung cancer patients on the web
SAN CARLOS, Calif. (September 17, 2015) — Today the Bonnie J. Addario Lung Cancer Foundation (ALCF) announced the launch of the ALCF Patient Portal, a comprehensive, interactive, online resource for lung cancer patients and caregivers. The patient portal provides information to patients at any stage of their lung cancer journey, including real time updates on medical advancements, new drug approvals, clinical trials and groundbreaking research.
“The ALCF is a community that supports medical innovation, research, clinical trials, collaboration and hope,” said Bonnie Addario, Stage IIIB lung cancer survivor and founder of the ALCF. “The patient portal is a home base for tens of thousands of lung cancer patients and caregivers that come to the ALCF website every year and want to know what is happening in lung cancer research, receive answers to their questions and find tools to stay informed and make better decisions about their health care.”
The patient portal provides a holistic, 24/7 support system for lung cancer patients. Features include:
“Rather than going to multiple places across the internet for information, the patient portal is everything in one place,” said Stage IV lung cancer survivor, Emily Bennett Taylor. “The patient portal lets me ‘look through the microscope’ and learn the cutting-edge scientific news that can impact my lung cancer journey. It is essential for staying informed, staying connected and improving the outcomes for all lung cancer patients.”
The patient portal will list articles and information relevant to individual lung cancer patient subsets with an EGFR mutation positive patient corner, an ALK rearrangement positive patient corner and other mutation specific resources.
“The patient portal ensures patients and caregivers stay up-to-date on the latest information within the scientific and medical research communities,” said Guneet Walia, PhD. Director of research and medical affairs for the ALCF. “Patients can sign up to receive notifications when new information is posted about their disease type and the interactive interface allows patients and caregivers to comment on articles and share within the platform. This is an important step for the ALCF and supports our overall goal to empower patients with decision making information.”
The interactive patient portal is also available through the ALCF’s mobile application, helping to put knowledge and power into the hands of lung cancer patients, answer questions on care and treatment options, track patients’ personal diagnostics journey and provide access to a support network.
The patient portal can be found at: http://www.lungcancerfoundation.org/patients/portal/
About the Bonnie J. Addario Lung Cancer Foundation
The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised nearly $25 million for lung cancer research and related programs.